“The Hidden Handicap – the Silent Epidemic”

A sea and dolphins

Article Title: “The Hidden Handicap – the Silent Epidemic”
Submitted by: Craig Lock
Category (key words): head injury, brain injury, neuro-psychology, effects of head (brain) injury

Submitter’s web sites: http://www.amazon.com/-/e/B005GGMAW4 http://www.creativekiwis.com/amazon.html www.lulu.com/craiglock and http://www.smashwords.com/profile/view/craiglock
The submitter’s blogs (with extracts from his various writings: articles, books and new manuscripts) are at www.headbraininjury.wordpress.com

Other Articles are available at: http://www.selfgrowth.com/articles/user/15565 and http://www.ideamarketers.com/library/profile.cfm?writerid=981
(Personal growth, self help, writing, internet marketing, spiritual, ‘spiritual writings’ (how ‘airey-fairey’), words of inspiration and money management, how boring now, craig)

Publishing Guidelines

I hope that the following piece may be informative to others. This article (as with all my articles) may be freely reproduced electronically or in print. If through sharing a little of my experiences, it helps anyone “out there in the often very difficult, but always amazing ‘journey of life’ in any way, then I’m very happy.

We share what we know, so that we all may grow.”

 

THE HIDDEN HANDICAP* – THE SILENT EPIDEMIC*

CLIMBING THE EVEREST WITHIN

everest

and
The following piece is from information that I’ve researched and collected over the past twenty-five years. Some of the writings are words from my own experiences and much material from sources unknown (some of which has been re-written and re-phrased by me). I am sharing this information in the spirit of promoting greater awareness of head (or brain) injury, as well as helping and hopefully encouraging “victims of the hidden ‘handicap’” to realise their full potentials and be all that they are capable of achieving, being and becoming.

Craig Lock
October 2005
*

Some introductory comments re the title of this article

* because it can’t be seen and brain /head damaged people look perfectly “normal” (what’s that!).

NB: NO, I don’t necessarily see it, this label as a ‘handicap’, but rather as an opportunity for personal growth.

Every adversity, every failure, every heartache carries with it the seed* of an equal or greater benefit.”
– Napoleon Hill (in his great book ‘Think and Grow Rich’)

* this should perhaps read “rather the POTENTIAL seed” in cases of head (brain) damage

“Just because a brain has been damaged, does NOT necessarily have to affect the human mind…and so the quality and height of our thoughts!”
*

Some Practical Issues in Dealing with Head Injury.

Head Injury: Some Facts

1. Lack of Insight

2. Memory problems

3. Poor concentration

4. Slowed responses

5. Poor planning and problem-solving ability

6. Lack of initiative- often incorrectly labelled as “lazy”

7. Lack of flexibility – a “one track” mind

8. Impulsivity

9. Self-centredness

10.Dependancy.
*

THE LONG-TERM EFFECTS OF HEAD INJURY:

Head injury is the greatest cause of disability under age 40. There are devastating effects of brain injury on people’s lives. With it come unique problems and effects – long term.

The presence of cognitive or personality problems have a large bearing on whether work is possible for the person. Even part-time work. Although the person’s cognitive deficits may be subtle, they can be hugely significant; yet no less disabling.

IDENTIFY the person’s strengths and weaknesses and devise practical strategies to avoid weaknesses. Then FOCUS ON STRATEGIES to alleviate and circumvent the problems as best as the person can.
*
An excellent book is ‘Living with Head Injury’
by Dr Martin D. Van Den Broek.

Limited attention span and amazingly fatigued by simple tasks. The victim of severe brain trauma may cause surprise, if he or she appears exhausted by his work; because by then he may have no outward sign of the injury.

N.B: FATIGUE:
Fatigue has probably been the most significant factor in my life following my accident. My entire life has revolved around and been shaped by adjusting to that chronic tiredness and getting through each day.

They may not be quite the people they once were. In subtle ways they will be different; although the change may only be apparent to their closest relatives. The world, however, will see them as, and expect them to be “normal” (but then, what is “normal”?).

Some Common Effects of Head Injury:

* Lack of insight, lack of judgement

* Short term memory: There is a change in intellectual functioning. The sufferer may become confused, appear vague and avoid certain situations.

* Personality change. Avoid labelling them as lazy.

* Boredom and an apparent lack of interest.

* Dysphasia: May have trouble speaking, finding the right words, putting them together to make a sensible sentence. Often I wanted desperately to say something; but was quite unable to say the words. A big “jumble”!

Physical difficulties:

Weakness on one side with one’s muscles, problems with motor control, loss of coordination, poor balance.
Cognitive (or intellectual) difficulties:

* I find it hard learning new things. Problems with attention and concentration???

* I experience great difficulties with information processing and with the speed of the processing, ie. especially difficulty with complex ideas and with shifting from one idea to the other.

* I have great difficulties with planning and organisation and put a big effort into that area to get by. The daily trials and tribulations of life!

* Slowness of thinking and to think logically. Less common sense than normal people!

* I get totally muddled…even with just two pieces of paper in my hand!

*Am really disorganized, even though I try really hard…daily

I’m best (far) in “one on one” personal situations, so I can best focus.

All these effects cause me great frustration at times…and sometimes far more than others. In short, I have a lot of difficulties with some of the mere basics of daily living, yet have wonderful people (many “angels”) helping me, so I can focus on my writing, what I believe I can do…best.

* Personality changes

* Visual inattention – unobservant.

* Very impulsive. Don’t think things through much.

*
NOTE: The following information has been supplied by the New Zealand Neurological Foundation.
Thank you.

Damage to your brain can affect everything you do. It may affect physical activities: hand strength and skills, balance, walking and running. What many people don’t realise is that adverse long term effects can also occur after quite mild injuries, like being knocked out at football. I’m amazed at how many rugby players suffer numerous concussions, and still continue playing. Must be very bad for them…and Francois Pienaar (former Springbok rugby captain and World Cup winner in 1995, as may be seen in the film Invictus starring Morgan Freeman and Matt Damon.) is still a very nice guy and perfectly “normal”. But look after yourself, Francois, your country still needs you.

Note:
Thank goodness the rule makers now have imposed an automatic two week ban (or perhaps it is longer) for rugby players, who have been concussed.
People who are recovering from head injury usually have problems with:
* Concentration
* Memory
* Organisation
* Irritability
* Fatigue
and
* their emotions

All these problems can occur after mild injuries, as well as serious ones. After severe head injury the control of FATIGUE and STRESS is the key to managing recovery. Fatigue damages all other functions and it’s management is the most important single factor in returning to work after severe head injury.
I have found coping with my chronic fatigue my biggest challenge throughout my life!
* *

HOW HEAD INJURY AFFECTS THINKING – AND WHAT TO DO ABOUT IT

The parts of thinking that matter here are concentration, memory, organisation, self-control and fatigue. We’ll talk about them separately, though they all interact on each other.
Concentration:
Concentration and attention are words, which describe how you can keep your mind fixed on what you’re doing. It’s vitally important; because most of the other functions of the brain, that we’re concerned with depend on it. As an example, if you don’t concentrate on what someone is saying, you won’t remember what they said. As well as this, concentration is linked to the speed at which you can deal with information by processing it. Concentration is impaired for some time after all head injuries, where consciousness has been lost. It can also be impaired, when there has been no loss of consciousness – for example, in the whiplash sort of accident. As part of fixing your mind on the matter at hand, concentration requires you to shut out distractions. If you’re not doing this well, you will find that other peoples voices, music in the distance or someone fiddling with a pencil will make you lose concentration…and at the same time probably make you angry and fatigued.
*
Memory:

There are several sorts of memory. The recall of trivial things, that have happened in the last hour or two is recent memory. When it is impaired, you forget where you put your spectacles, who came to lunch, or what you had to get at the shops. It will be bad, if your concentration is poor. Events that you would expect to remember days or weeks later are stored in our long term memory. Things you do repeatedly, either as everyday routines, or as part of your professional skills, are called ‘overlearned’ and are firmly fixed in this part of memory. Head injuries almost always affect memory to some extent. Immediately after the injury, for minutes, hours, or days, depending on the severity of the injury, the human brain stops recording passing events. Though you may have recovered consciousness and be able to answer quite searching questions about your surroundings, this is not being stored in your memory – you are in a state of post-traumatic amnesia. When you start recording events again, you will find that there is a gap in memory from the moment of the accident. Occasionally “short islands” of memory remain; but the rest never comes back. It’s not surprising that after this period of complete failure, memory should take some time to recover. The worst difficulty is with memory for events occurring in the last hour or two, or the last day or two. This results in trivial annoyance: ‘where did I put my spectacles?’ With more serious disability, important information is forgotten and appointments missed. Longer term memory is also affected: both storing new memories and recalling old ones. Both sorts of memory depend very much on the person’s states of fatigue, focus and concentration. For example, it is far more difficult, when you’re tired or surrounded by distractions.

Organisation:

Some people start the day knowing exactly what they have to do and the order in which to to the various tasks. They can re-organise their schedule, if the original plan is upset. Others are less confident; they need to think it out and then write a list of activities. After a head injury people are usually even less sure of how to organise themselves and plan their day – unless they concentrate on what needs doing and write a list, “bits and pieces” will be forgotten. Even then, if anything goes wrong, they’re “thrown”. That’s me! As a result, it may seem as if they are lazy, or to have lost their motivation.

Self control:

Dealing effectively with something that annoys or threatens you needs a brain that functions quickly and efficiently. One which can retain an instinctive angry or even violent response. After head injury, people find it difficult to cope with the little annoyances of everyday life and tend to snap back…and this, of course, is worse when they are tired.

Insight:

To get on with people, at home and at work, you need to be able to look at your own behaviour realistically, and to read other people’s reactions to you from the subtleties of what they say, or their body language. This is a complex and difficult skill and after head injury, may be too much to manage. This can show up as inappropriate behaviour towards others, perhaps undue familiarity, or neglecting ordinary social rules. The other important result of losing insight is that you may become unrealistic about how much your abilities